Anyone who knows me knows about the battles I have had in my life with my immune system... The link to the above is quite sad news for CFS sufferers all over. I've never been one to hold out hope on having CFS "pinned" but it would have been nice to have confirmation of at least how it started. The doctors at GOSH were convinced I developed mine through a bout of Glandular Fever, but I guess we'll never know for sure. All I know is that I made it though to the other side.
This is something that does not tend to get in my way these days, however, after such a stressful week in the world of me, the dreaded symptoms return. I've got a nice cuddly bottle of Maalox (As well as my other vitamins and boosts) sitting beside me waiting for the fun to commence...
I highly recommend reading this link for the Spoons Theory, not for myself, but encase you know of anyone with Lupus, CFS, Fibromyalgia or practically any immune system disorder. You may have never even heard of these conditions, but I bet you that you know someone who has one of them: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory-written-by-christine-miserandino/
This link made me cry when I first read it, in the years of being ill I was never once able to put how I felt into words. It's helped me a lot and perhaps it might help you.
Thank you for sharing - and SO glad you love the spoon theory too !! Look forward to following your blog & so glad you are out the other side- a year is a year too long in CFS/M.E Prison ! xx
ReplyDeleteMy wonderful boss, Jim, has Lupus. He's a wonderful man who also has a daughter who suffers badly.
ReplyDeleteHe introduced me to the Spoons Theory a couple of years ago and it truly makes sense.. I went home to my mum and cried once I'd read it. I'd waited so long to be able to put what I'd felt into words.